Introducing Erin
Erin is a Mom who regularly attends Moms Who TRI bootcamp and is participating in the Taylor Love Triathlon. This past Monday she organized and hosted a kids triathlon (1oo swim, 1 1/2 mile bike, 1/2 mile run). Ages 4-15 participated and it was a wonderful event. Erin and her family have quite a story which can be read and followed on
http://www.caringbridge.org/visit/sadiemaelauer. The following is an entry Erin recently wrote regarding the upcoming triathlon. I invite you all to read it and be inspired like I was.
I know you haven’t heard from us in a while, but as long as we have this CaringBridge site, you can count on a journal entry or two in September because it’s CHILDHOOD CANCER AWARENESS MONTH. We’ve shared this fact many times, but it bears repeating: 36 children are diagnosed with cancer every day. Please take a second to really think about that. That’s 252 new diagnoses this week; 1,080 new diagnoses this month. Those numbers are staggering; they’re absolutely sickening when you start assigning names to them and realize that each of these precious children have a unique life and story.
You know Sadie Mae and what she has had to endure in her short lifetime because of cancer. Every year, 13,140 children, just like Sadie, embark on their own cancer journeys. Each of those children has loving parents, siblings, grandparents, friends, neighbors, etc. And although the overall survival rate for children’s cancer has increased from 10% to 78% in the last 40 years, approximately 2,890 of those dear children who are diagnosed with cancer each year do not survive. I can’t even fathom what the depth of our grief would be if Sadie was one of those 2,890 children. It’s terrible, it’s unthinkable. It’s the truth: children are diagnosed with cancer and are dying from it. It’s got to change. Only research cures cancer and childhood cancer, in particular, is severely underfunded. That’s why we try to do our little part to raise awareness and money for childhood cancer.
This year our family is celebrating Childhood Cancer Awareness Month in the actual month of September by participating in the Taylor Love Sprint Triathlon on the 16th. Anna is going to swim while friends Mike and Althea handle the biking and running. Ethan and I have been training for months, so it sounds silly to ask you to consider signing up now, just a couple of weeks before, but how about creating a relay team like Anna’s? If you think running 3.1 miles is no problem, find a friend who feels the same way about biking 15.4 miles and another friend who can easily swim 400 meters. There is no age limit for the swim as long as the participant can safely swim 16 laps and follow directions; the minimum age for bikers and runners is 14. Think about it. Seriously! It’s going to be a lot of fun. Sadie will be there to cheer us on.
We are also gearing up for our one and only major childhood cancer fundraiser this year – the Northern Virginia CureSearch Walk on October 14. We help to coordinate it, but Team Sadie’s Stars is all Anna’s. She will host her annual lemonade stand this weekend during the Burke Centre Festival, so please stop by on your way to or fro. As always, all donations will be sent to CureSearch in the name of Sadie’s Stars. The greatest satisfaction that Anna derives from the Walk every year is having all of her friends together in one place, supporting this cause about which she is so passionate. I can’t tell you how meaningful your participation is to all of us. Please mark your calendar and join us, if at all possible. We totally understand that it is difficult to attend on a Sunday morning and is nearly impossible for all of you out-of-towners. If that’s the case, would you consider being a “virtual walker” or simply make a donation to Anna’s team? We’ll do the walking for you!
www.curesearchwalk.org/northernvirginia Search for “Sadie’s Stars” under Team Rank.
Finally, a medical update. I’d love to tell you that it has been smooth sailing since Sadie earned her remission status in the spring. Ethan and I were so thankful and wondered out loud to each other if we could really put the fear of cancer out of our minds. We tried. We made all sorts of fun plans for the summer and swatted down the nagging questions about possible late effects of treatment. The girls had been passing a stomach bug back and forth that presented with a fever, vomiting, and diarrhea. At one point, Sadie had a high fever, but none of the GI issues; she would, however, whimper, “My chest hurts,” while clutching it. Who takes complaints like that from a new 3-year-old seriously? Our pediatrician does and ordered a chest x-ray. She thought that Sadie was developing pneumonia so she ordered an antibiotic and a follow-up x-ray a week later. That x-ray showed absolutely no improvement. What now? We rushed, carrying yet another suspicious x-ray, to the pulmonologist who originally found Sadie’s tumor sitting on the top of her right lung. Long story short, he does not suspect cancer. It appears as though Sadie has significant scarring in both lungs; one of the chemo agents she had likely is to blame. We were so relieved it wasn’t cancer. Then we were so sad that she was permanently damaged in this way. We will just have to watch her closely when respiratory illnesses pop up and make sure that they don’t get out of control. As Dr. Chester said (I’m paraphrasing): It stinks, but Sadie is here today. We will always feel terrible about the choices we had to make for Sadie when there really weren’t any good choices at all. Honestly, we hope and pray that the worst is behind us, but it feels as though we will never really be able to say that Sadie’s cancer journey is over.
We appreciate your continued prayers. Love Love, Erin
p.s. The first time I read about the triathlon on Taylor’s CarePage, I totally dismissed it. The next day, I actually had to find the message in my trash folder. So if you’re at all entertaining the thought of doing it with us, think about Sadie. When I’m swimming my laps, I like to picture Sadie frolicking in the pool. She truly is a spectacle. Sometimes we would hear audible gasps as she flung herself off the diving board and swam to the side of the pool. She seems to be part fish and absolutely loves the water. SWIM LIKE SADIE! When I’m biking, I like to picture Sadie seated on her tricycle. She zooms all around on that thing, but has not yet mastered the pedals. Although I think the “correct” way to ride it is to pedal, all she cares about is that she’s moving from point A to point B and is having a great time. BIKE LIKE SADIE! When I’m running (and usually bemoaning how much I dislike running), I like to picture Sadie running, arms flailing about. Like me, she’s not fast, but unlike me, she seems to delight in the mere fact that she is able to run. RUN LIKE SADIE! Don’t delete this message – you may want to access it tomorrow so you can sign up for the triathlon on September 16. 🙂